Відео

CAR T-cell therapy is paving the way for a new era in cancer treatment. Personalized and powerful! #HealthRevolution #CAR-T ua-cam.com/video/8o70F5UrJ3k/v-deo.htmlsi=GSlr06vjHsu071To

Does anyone know where this doctor practices? Really need an appointment . Thank you

Very good explanation. Thank you 🌷🌷🌷

Thank you for your presentation. 6/17/24 at 4PM. I was recently diagnosed with low grade lymphoma and was looking for a diet for foods I can eat. I still need a colonoscopy and some things give me diarrhea. After everything is evaluated in will be getting Rituxan injections.

God Bless!

Very interesting!

Thank you: that was very clear, positive and encouraging compared to other confusing and depressing content out there. From a MCL young patient. ❤

after relapse Hodgkin Did immunotherapy treatment is effective????plz reply

Amazing 🎉🎉🎉❤❤

My daughter suffering from anaplastic large cell lymphoma stage 3 cancer she is 3 year old she is admitted in shifa international hospital islamabad pakistan and her crp level going to high 382 doctors fail to come over the blood infection plz tell what we do

Chris, I hope you are doing well in 2024 and it's inspiring that you reached your goal to survive until your children were in college. Terrible you lost your wife so you're children completely relied on you. It's incredible you survived multiple relapses as the statistics are very poor for relapse situations. If you could comment on what treatment(s) you got over that time it would be appreciated. Your video sounds like it was made in 2020 so you had this disease for 10 years from the time of your youtube posting making you a long-term survivor :)))

I have PCNSL diagnosed in April 2015 and now its May 2024. No stem cell therapy or surgery or whole brain radiation for me only massive doses of methotrexate plus other drugs done at the Cleveland Clinic. I am now 67 years old and live independently. I largely live a normal life and I retired at the end of 2020. I have my good days and bad days and I also use medical marijuana as needed. That is probably a bad habit and not helping things but when you're confronted with this disease you figure live life while you can. I get an annual MRI and have one scheduled in July 2024. I suspect I got the lymphoma from taking immunosuppressants treating my Crohn's disease leading to a permanent illostomy in 2007. I still have bouts of confusion and they are getting worse and the Marijuana doesn't help either but I don't do it every day but 2 to 3 times per week. Slowing down in many ways and I don't know how much longer I have but I have been fortunate to get these 9 years so far. I can only say the worst and scariest feeling in the world is being aware your mind is going and you're helpless. Also, I had personal problems in 2015 and I lost the one person who was willing to take care and help me (and it wasn't my wife with whom we eventually divorced). I can only say I hope those of you out there who find this will have similar or better success with this disease. I was on the fence with whole brain radiation and said I'd do it but the doctor said my decision was too late and I was only allowed the chemo. Best fortunate outcome for me as whole brain radiation will cause long term damage. I decided I'd rather have the shorter live with quality of life than longer life with the additional cognitive impairment from radiation which I was told can be quite debilitating. Everyone's story with this disease is different and I hope anyone out there will have great success but regardless enjoy every additional day you have as a gift and this disease gives you an appreciation for each day...and if you can enjoy life and help others as you can as that is one of the purposes of life too....to help others. let me also add that in 2015 as I was having vision problems in my right eye I kept seeing eye doctors until I was sent to an eye doctor at Cole eye institute at Cleveland Clinic. Eventually that eye doctor ordered an MRI for me to eliminate unusual possibilities (he said don't worry about it it's unlikely). Well, unfortunately (or fortunately) they found a large tumor on my brain stem basically inoperable. It took them a while to determine what kind of cancer I had. I had a spinal tap but those results didn't reveal anything. They were talking about doing a brain bioposy (which is risky) but my eye doctor talked the other doctors in doing a vitrectomy (removing the fluid in my right eye). That was done (who likes having someone doing a procedure with a needle on your eye while awake (in twilight sedation). The fluid had the lymphoma cancer cells in it and that was how they identified it. I am very grateful for my eye doctor and the excellent call he made. I think the other doctors there respect this eye doctor which was an impression I got. So I'm just adding this to say it's a process to figure out what's wrong with you and then determining a best path forward. And to add another piece of information on my specific circumstances, I have a family history of autoimmune diseases. My only sibling (brother) died in 2004 at age 52 from complications from Type 1 diabetes he got when he was 5 years old. My father died from complications from having severe Rheumatoid Arthritis to the point he was completely bed bound towards the end. And then I got Crohn's disease as previously mentioned around the year 2000. So just to add a little history here. Another thing as I recall I was having cloudy vision problems in my right eye and when I closed my eyes I saw an odd pattern like tendrils going to a center point. It was odd. I had this vision situation for I think like 2 years prior to my diagnosis and I felt increasing drawn and listened to the Christian radio network called "family radio". I liked listening to the stories although I'm not particularly religious it still gave me comfort. Maybe my body was telling me something or maybe something else I can't explain was calling me. They say there are no atheists in a fox hole. I have to agree with that and I can hope everyone has a strong social support network. But in the end it's just you and your maker. I have not felt this "closeness" for the last few years and it kind of feels a little like a "loss" but occasionally I remember and tune in the radio/internet in those times to get that comfort.

If anyone has been given an HSTCL or NK lymphoma diagnosis I have information extremely helpful.

I have this also

I'm not sure you're aware that you did this, but every time you mentioned us going to a doctor, it was a man. Using the gender-neutral "they" pronoun leaves room for anyone of any gender to be a doctor. This simple change of language can have an impact on equality in the medical field.

😊

just got diagnosed with cancer at 17 years old. :( about to turn 18z

This was an extremely helpful and informative discussion of the disorder. Thank you.

ive had like 4 swolen lymph nodes on my head and upper neck, they havent gone down but also havent gotten bigger, and are moveable. I have noticed them about a year ago and dont know whether to be concerned, as I have been to the doctors multiple times but they have all said its fine

Thank you for this excellent video!

A great summary of the patiënt specific info I got as an European/Dutch survivor of DLBCL.

what about the root cause?

What is the incidence of cytokine release syndrome after car t cell therapy, Greetings from Dr Adithya knv md medicine Chennai India.

This is so very sad to hear. May your daughter be free of this torment 🙏🏼

How do you help under 60 year old FL patients who fall in the cracks that don't have health insurance, and can not qualify for a trial?

Close to midnight, just want to thank you for sharing this video.

How did he not mention: Increased pancreas, sweats, intermittent nausea, general tiredness.

Our Daughter has Peripheral T-cell lymphoma stage 4. She went through 5 chemo treatments and by the 6th one she was too weak so her Oncologist postponed it. Prior to her 6th treatment her Dr said she shouldn’t be having pain, the chemo should have been effective enough by this time so instead of doing a full body pet scan she referred her to a pain Dr thinking she had become addicted to the pain meds. What a bid mistake that closed minded Oncologist had made at the expense of our Daughter, she is now in Hospice and we are waiting for her to Die, I’m so angry right now I could scream. I want every person that has anything to do with this or any other cancer to hear this so hopefully no one else will go through this. Our precious daughter is 44 years old. This just shouldn’t happen but it did because this Oncologist said it never goes there, well guess what, it did go there, to my knowledge it made its way between the skull and protective layer around her brain, it had also settled in her spine.

Thank you. This was a very informative video

GRACIAS, MUCHAS GRACIAS

42 year old mom of 4 little kids, diagnosed 9 months ago... This was so hopeful and positive! Thank you.

Thank you for the information very helpful in understanding

They told my husband that he was terminal.

❤️

Wow what a great video, very informative, I was diagnosed with stage 4b MCL, unfortunately my cancer wasn’t detected and remained indolent until it finally became aggressive. Symptoms included extreme weight loss, cramping in legs and groin, increased itching all over body, veins also became more pronounced, I had a massively enlarged spleen measuring 28.8cm, and it was decided I would need intense chemotherapy and targeted steroid, R-Chop regimen would be the best treatment plan, along with an autologous stem cell transplant, it has been a challenging process, but I am nearly 1 year since my stem cell transplant, and I am managing to stay free of lymphoma, which is a credit to my medical team, London Bridge Hospital 👊🙏 you are the best, despite being given just months to live without immediate medical intervention. I am still recovering from the after effects of the chemotherapy, and suffer with joint pains. But I am still here and will continue to fight to be here, for the future ❤.

Hi there. Thank you for a comprehensive, data driven webinar on Car T and its’ application on Lymphomas.

can you PLEASE speak specifically to Non-Hodgkins Follicular Lymphoma? I can NOT find any videos that deal with this type of Lymphoma. I am 11 years living with it and need more information. I think I am out of remission and need more information. Thank you

if DLBCL，the chemotherapy will reach about 70% remission rate, however, others(30%) must try other therapy.

I was diagnosed with Mantle Cell Lymphoma Stage 4 back in November 2023. So far I am going on my 9 and 10 Chemo treatment. Is there a CURE!!

❤ Thank you for all the 🔬

I have low lymphocyte CLL. It's hard to find discussion about this condition.

My sister was all over her body diagnosed. Please suggest referrals

Yesterday i go my CAR T cells From yesterday night fiver and low blood pressure ..will see ... I m 45 years..i had PMBCL second time after first line therapy in 5 months it came back..

Excellent webinar. I wish to enrol in LRF webinars. I am retired professor of immunology

My bf is NHl he done 6 sission of chemo,and February 6 he start for strong chemo for autologous stem cells, after they put back the stem cells and after 2 days he feel very bad, fatigue,dearhea,can't urinate,and doctor give antibiotics but he become worst we expect after 12 days of stem cell he will be ok a bit, coz the stem cells will grow back after 12 days ,but now more than 12 days he still in icu, on ventilation,no improvement, worst day by day,and they said he's kidney,lungs, intestine are infected 😢😢, 4 days didn't wake up already,we ask the doctors why it becomes like this?they said they put not really strong chemo but still like this,but we still do our best to save the patient😢😢 really cannot trust this procedures😢😢

Hello, my name is Josh. I am 27 years old and I was diagnosed with stage 2 grade 3a Follicular Lymphoma back in early november of 2022. I had a PET scan, a Bone marrow aspiration, and an EEG. It was not found in my bones, and was located only in one spot in my neck, that I had for a few years. I am pursuing Master's in Biology, and I was wondering if I could live into my eighties like my grandparents did. I was asymptomatic, and had no idea that it was FL. I was put on a 6-month regimen of rituximab and bendamustine. I finished my treatments back in May of last year. My oncologist gave me quote on quote curative treatments and said it only had a 10 to 20% chance of coming back. I often read online that it is not curable, but responds well to treatment. Should I have any doubts and will I have to change any of my life plans because of getting this disease my mental health is suffered a lot because of it. I am afraid to die young, and to not live a full life. I constantly examine and check myself, and I go into an anxiety attack every time I feel something that's not identical on both sides. I felt a couple weeks ago a small lump in my right arm pit that I'm getting checked in a week.

I'm also a patient of Follicular NHL and I have just started chemo, it was troublesome, I was hallucinating, week but I was eating normally, not vomiting, but my blood pressure was going so low after the cycle of chemo, Monday I'm going to the second cycle, I don't know how I will react. Mine is grade 2, stage 3a cancer

It took my 2 years. I was misdiagnosed for having Eczema/psoriasis, and they had me on several types of cream. It's been 20 years and I had total body radiation in 2020 because I had tumors here and there. However, for me now here in 2024 and I'm 47 Im still struggling in stage 1B. I have a combination of treatments clobetasol Propionate, ValchIor, and phototherapy. Now they want to do Bexarotene and Im scared due to the side effects. I want to be able to tell my story like this lady. How can I do so?

Acalbrutinib and Rituximab is the way to go on 1st Relapse . Hello?!?!?!?

I have had Blastoid MCL for 5 years . my WBC count went from 13.6 avg over last 16 months. After starting a red meat diet 6 moths ago, its now 9.1, well within Normal. (9100 count per 3.38 oz of blood)